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Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

Sublaxed my hip last night at the painting place,1651848446375909477
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Sublaxed my hip last night at the painting place, hurt for the rest of the night, but then overnight I dislocated it and woke up in extreme pain, took a pain pill went back to sleep, mom helped me get it back in at least mostly but it's been killing me all day! Sitting with my legs up, heating pad on, and have taken another pain pill... Hopefully the pain is better tomorrow!#eds#ehlersdanlossyndrome#fibromyalgia#endometriosis#gravesdisease#sjogrens#pots#posturalorthostatictacycardiasyndrome#chronicpain#chronicillness#migraines#lifeofascienceexperiment#adventuresofascienceexperiment#dislocation#dislocatedhip#sublaxation#pain#painmeds

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

Had an appointment with physical medicine this mor 1647351046609536229
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Had an appointment with physical medicine this morning, he ordered x-rays and PT for my low back/hips and then possibly epidural injections in my back... So we'll see what happens with that.Now I'm sitting waiting for the CT of my brain because I can't do the MRI because of my loop recorder. #lifeofascienceexperiment#appointments#adventuresofascienceexperiment#eds#ehlersdanlossyndrome#endometriosis#fibromyalgia#sjogrens#gravesdisease#pots#ctscan#migraines

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

This book describes my life to a T! They should ha 1645460679299694168
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This book describes my life to a T! They should hand this book out when they give the diagnosis, it explains so much! #eds#ehlersdanlossyndrome#pots#endometriosis#fibromyalgia#gravesdisease#sjogrens#chronicpain#chronicillness#migraine#lifeofascienceexperiment

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

So tired! Haven't felt good the last couple days, migraines are back, my body hurts all over, and I'm nauseous and my stomach has been hurting for a few days now. I've been having trouble with sublaxing joints which is causing a lot of pain too.Went and had my thyroid levels drawn this morning, curious to see what they are since I feel so awful!#eds#ehlersdanlossyndrome#fibromyalgia#endometriosis#gravesdisease#sjogrens#pots#posturalorthostatictacycardiasyndrome#chronicpain#chronicillness#migraines#thyroidproblems#lifeofascienceexperiment#adventuresofascienceexperiment

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

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This is my life.Honestly, I hate taking pills, I hate having to rely on them. I hate how they make me feel, the side effects, the brain fog, etc. However, this is what keeps me alive and halfway functioning. My conditions are chronic, and genetic, they aren't going away, they are only going to get worse. Once a week, on Monday nights, I sit for almost an hour and fill my medication boxes for the upcoming week. I take medicine 4x a day, and they have to be spaced out just right so they don't affect each other. I've added a new vitamins this week, so far so good on them. #lifeofascienceexperiment#adventuresofascienceexperiment#lifeofaspoonie#eds#ehlersdanlos#pots#posturalorthostatictachycardiasyndrome#sjogrens#gravesdisease#endometriosis#fibromyalgia#asthma#allergies#anxiety#loopmonitor#chronicpain#chronicillness#migraines#medicationkeepsmealive#medication#toomanypills

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

Starting taking #melatonin Last night, holy crap w 1640347885663224060
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Starting taking #melatoninLast night, holy crap why have I not been taking this?! I slept so good! I hope this trend continues! Neurologist started me on the melatonin, vitamin B2, and Co Q-10 since I already take magnesium.He is hoping these vitamins will help me sleep better and decrease the frequency and intensity of my migraines.#eds#ehlersdanlossyndrome#fibromyalgia#endometriosis#gravesdisease#sjogrens#pots#posturalorthostatictacycardiasyndrome#chronicpain#chronicillness#migraines#lifeofascienceexperiment#adventuresofascienceexperiment

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

Almost 4:30am and haven't been to sleep yet! Stupi 1639060945731090644
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Almost 4:30am and haven't been to sleep yet! Stupid insomnia and pain! I've taken pain meds, Benadryl and all my regular meds and I'm still awake!! I had gone almost a week of good (sorta) sleep and falling asleep and then BAM insomnia! #eds#ehlersdanlossyndrome#fibromyalgia#endometriosis#gravesdisease#sjogrens#pots#posturalorthostatictacycardiasyndrome#chronicpain#chronicillness#migraines#exhausted#lifeofascienceexperiment#insomnia#adventuresofascienceexperiment

Elizabeth Isner (@chronicallyrare_1992) Instagram Profile Photochronicallyrare_1992

Elizabeth Isner

Went out for a little bit today, had a second inte 1638740372148856366
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Went out for a little bit today, had a second interview, dropped off some stuff with a friend, went to Target, the bank, and Publix to pickup a prescription. I thought the sale ads changed today, but it's not until tomorrow, so I'll go back tomorrow to get the sales. I didn't do a lot, but I'm exhausted now! #lifeofascienceexperiment#lifeofaspoonie#eds#ehlersdanlossyndrome#fibromyalgia#endometriosis#gravesdisease#sjogrens#pots#posturalorthostatictacycardiasyndrome#chronicpain#chronicillness#migraines#adventuresofascienceexperiment