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Mariah

Bio My saga of mmj, doctors, & chronic, life threatening illnesses. My life is governed by Murphy's Law. Follow at your own risk. I am not a doctor.

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Thursday they placed a nasojejunal (NJ) tube. It was a 14 minute procedure without sedation that felt like hours. It is definitely helping my intestines and hydration, while providing some problems of it’s own. It is a temporary step and a successful proof of concept. It will be inserted for less than a month. I have a consult with a gastrointestinal surgeon in January to discuss the placement for a more permanent j tube. This is the first time in many years that my gastroparesis symptoms have subsided to truly tolerable levels. I am so grateful and so hopeful. #food#nj#hospital#hope#relief#invisibleillness#disability#chronicillness#medicine#dysautonomiawarrior#patient#gastroparesis#hsd#pots#hypermobile#california#queer#girlswhosmokeweed#weedismedicine#legalize#pot#ganja#ganjagirl#mmj#marijuana#medicalmarijuana#stoner#high#cannabis#cannabiscommunity

Securing this thing is a pain. My body and I reall 1667677939565493662
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Securing this thing is a pain. My body and I really don’t like adhesive. The former burn ward nurse’s suggestion for securing the NJ is starting to sound really good about now, but I don’t think I can find anybody to stick a staple in my nose so they can suture the tube to it. 🤣🤣🤣 I really, really hate adhesive. #tape#food#feeding#feedingtube#ambulatorynj#invisibleillness#disability#chronicillness#medicine#dysautonomiawarrior#patient#gastroparesis#hsd#pots#hypermobile#california#queer#girlswhosmokeweed#weedismedicine#legalize#pot#ganja#ganjagirl#mmj#marijuana#medicalmarijuana#stoner#high#cannabis#cannabiscommunity

A friend in Alabama sent us some of the best grits 1667514290951613812
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A friend in Alabama sent us some of the best grits on the planet. I can’t wait to cook them for hubs. I wish I could eat them, but gastroparesis with moderate small bowel involvement means insoluble foods like corn will generally hang around for weeks, months, or in my case, years. Maybe I can sneak a bite once they put the j-tube in. #alabama#grits#southern#food#corn#invisibleillness#disability#chronicillness#medicine#dysautonomiawarrior#patient#gastroparesis#hsd#pots#hypermobile#california#queer#girlswhosmokeweed#weedismedicine#legalize#pot#ganja#ganjagirl#mmj#marijuana#medicalmarijuana#stoner#high#cannabis#cannabiscommunity

I was really worried the cats were going to freak1666510567060074669
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I was really worried the cats were going to freak out about the tube and it’s equipment. Bandit is not a fan of the pole, but Alice doesn’t care at all. Really grateful she is still willing to cuddle. #cats#catsofinstagram#nap#couch#cat#invisibleillness#disability#chronicillness#medicine#dysautonomiawarrior#patient#gastroparesis#hsd#pots#hypermobile#california#queer#girlswhosmokeweed#weedismedicine#legalize#pot#ganja#ganjagirl#mmj#marijuana#medicalmarijuana#stoner#high#cannabis#cannabiscommunity

Yesterday sucked. Today is sucking less. We’ve man 1665623284924641735
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Yesterday sucked. Today is sucking less. We’ve managed to increase my feeding rate to half of what they want. We are creeping up slowly because the last thing my body needs right now is more trauma. Attempting to smoke out of Sequoia today, hoping her double tree percs won’t make me cough as much. Ugh. #roughweek#tough#fierce#whoamikidding#ijustwannacurlupinaball#invisibleillness#disability#chronicillness#medicine#dysautonomiawarrior#patient#gastroparesis#hsd#pots#hypermobile#california#queer#girlswhosmokeweed#weedismedicine#legalize#pot#ganja#ganjagirl#mmj#marijuana#medicalmarijuana#stoner#high#cannabis#cannabiscommunity

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