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Natalie Keil (@talie_keilza) Instagram Profile Photo talie_keilza

Natalie Keil

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Braced the snow today for a very quick gym sesh (arrived at 1, they were closing at 2 because of the weather 🙄) 10 minute warm up run and then some glutes and abs, queue beetroot face. Stuck to plan well today although I used up all 15 syns... Bloody Jaffa cakes, you can never just have ONE. Left myself 3 syns for a hifi bar and a cuppa before bed. Weigh-in tomorrow, hopefully my slightly indulgent week last week doesn't punish me too much 🙏🙏🙏 life

image by Erin (@the_salty_warrior) with caption : "Going to clinic has never been easy for me. I’ve always lived 8 hours from any clinic so it means packing bags of meds, " - 1697335346846986737
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Going to clinic has never been easy for me. I’ve always lived 8 hours from any clinic so it means packing bags of meds, clothes, and anything else I might need for a few days. I’m trying something new this time: I bought a black roller bag to take into clinic with me. It will eliminate trying to carry a backpack or shoulder bag which always wears me out. Hopefully it works good and will be a solution to me being a pack mule! I’m fortunate to be able to fly to clinic today but many times I have to drive the 8-9 hours (depending on weather and traffic.) I have to admit, I’ve always been jealous and felt frustrated with people complaining about their 20-60 minute drive to clinic. But either way, I know clinic isn’t easy for anyone to stop their life and make room for it. I’ll update from clinic as I can - wheels up soon 🛫 life

Instagram Image by McKenna Hardy (@thesaltymutanteats) with caption : "Not a great photo, but a great view! Last time I did this hike, I was super sick. I was between health insurance and was" at Lost Coast - 1696823890162822301
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Not a great photo, but a great view! Last time I did this hike, I was super sick. I was between health insurance and was terrified of the hospital bill if I went in. We were in the middle of moving: still owned our house and living in a camper in a random persons backyard in the new town (friend of great grandmothers from a long time ago), half the family in the trailer, half the family in the old house 7 hours away. It took me 40 minutes to hike back up the steep switchback cliff with low lung function and a low fever. Today, it took me 20 minutes. Despite it being 50*F outside, I took off my sweater because I was sweating, breathing hard, heart racing, and had to slow down, but I didn't stop. 🏃🏻‍♀️ life

Image by @65roses.h with caption : "hey everyone! Health update🎉 
Sooo i’m doing pretty well! Compared to July when i was on a downward slope, my BMI has im" at UC Davis Medical Center - 1696814395794321571

hey everyone! Health update🎉 Sooo i’m doing pretty well! Compared to July when i was on a downward slope, my BMI has improved a LOT. Sadly i’ve pretty much stopped growing , so i’ll be eternally 5’1” 😭. Some more good news tho is that my PFTs have improved! I don’t know where they were last time but my doctor was impressed with my numbers this visit 😁 Hopefully i can maintain my health so i won’t have to go to the hospital this year! 🤞 • • • • • • • • • life

I Want To Breathe (@iwant2breathe) Instagram Profile Photo iwant2breathe

I Want To Breathe

image by I Want To Breathe (@iwant2breathe) with caption : "Wanted to this test every Sunday, but decided that there is no point to do so often. 
Last one I did in December. In hos" - 1696593023632568551
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Wanted to this test every Sunday, but decided that there is no point to do so often. Last one I did in December. In hospital. My FEV1 was 37%. Not gonna lie I was surprise to see this result. But I am happy to see this 😀 My goal to increase me FEV1 to 45% at least. Probably gonna fail. But I'll try my best. life

Natalie Keil (@talie_keilza) Instagram Profile Photo talie_keilza

Natalie Keil

image by Natalie Keil (@talie_keilza) with caption : "Very sweaty gym sesh today! Was so good to be back - the crappy weather was stopping me from going a run all week but to" - 1696506222444262510
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Very sweaty gym sesh today! Was so good to be back - the crappy weather was stopping me from going a run all week but today I bit the bullet and went on the treadmill for a 10 minute warm up before an intense upper body set - I was up and down the stairs to our flat about 20 times yesterday and my knee and hip were feeling a bit achy this morning - hopefully not too sore tomorrow so I can get back on it 💪 so chuffed with how much my running has improved, 10 minutes of running without stopping was unthinkable last year!xx life

image by McKenna Hardy (@thesaltymutanteats) with caption : "Late starting my breathing treatments today. My glucose sensor was going off all night with wrong readings before I deci" - 1696032565373136907
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Late starting my breathing treatments today. My glucose sensor was going off all night with wrong readings before I decided to turn it off because it was less than a day away from expiring anyways. So I didn't get to sleep until 4 am. Slept in till 11 am, and then went with my mom to look at a new car as our distance driving car has 185k miles on it and the engine light is on. So now it's almost 3 pm and I'm just getting started. 😬 Better late than never! Still need to run an errand for my great grandmother, maybe go for a walk on the beach, wash my bedding, and hit the gym tonight. I told my sister I'd pay her $20 if we didn't go today because I've been saying for 3 days we would go but haven't. 😅 life

I Want To Breathe (@iwant2breathe) Instagram Profile Photo iwant2breathe

I Want To Breathe

image by I Want To Breathe (@iwant2breathe) with caption : "This is how my room looks like at the moment 😀
And this is why I can leave one month and just one month alone in another" - 1695839803297607112
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This is how my room looks like at the moment 😀 And this is why I can leave one month and just one month alone in another city even :) But still I miss my room a little bit. Just tiny bit. Not much.. to be honest I don't wanna come back. I want my own place. But again... we are not millionaires. _______________ Quick health update. Lost my voice 😀 it's soooooo cold outside... it's hard to breathe. I don't even want to go outside. But now I will sit home for a few days. life

Natalie Keil (@talie_keilza) Instagram Profile Photo talie_keilza

Natalie Keil

image by Natalie Keil (@talie_keilza) with caption : "Friday morning meds #cysticfibrosis #cysticfibrosislife #df508 #dailymeds" - 1695680139566102014
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TheCFLawStudent (@the_cf_law_student) Instagram Profile Photo the_cf_law_student

TheCFLawStudent

image by TheCFLawStudent (@the_cf_law_student) with caption : "Current situation: studying with some glitters on the side... #lawstudent #lawexams  #thankgodforglitter #cysticfibrosis" - 1694554662907117856
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Current situation: studying with some glitters on the side... #cysticfibrosislife